Highlights: Patient initiatives and implant card project

The NJR shared data through its Public and Patient Guide and supported patient blogs

Each year, the NJR produces a Public and Patient Guide to its Annual Report. In Autumn 2013, the NJR published both an Executive Summary and full Public and Patient Guide [link] as part of its commitment to finding the best way possible of sharing NJR information with patients, their family, friends and carers.

The registry also works closely with its Patient Network to ensure that patient views help make the decisions about how to present the information in the most useful way. In 2013/14, its membership grew by 50%.

Sharing patient stories

Significant progress was made through the launch of the NJR Hippy Chick blog (www.njrhippychickblog.wordpress.com) sharing NJR Steering Committee member Sue Musson’s experience of hip replacement.  This record of pre- and post-operative experiences has been read more than 8,000 times world-wide.

Another NJR colleague also blogged as he underwent total knee surgery and his story can be found at www.kneedyman.wordpress.com.

The aim of these blogs is to show how NJR information can support a patient’s understanding of joint replacement surgery. 

Keeping the patient perspective on the agenda

Three regional hospital events were held as part of the NJR’s 10th anniversary celebrations. These learning events are one way of sharing best practice in NJR processes and also to say thank you to hospital colleagues who support the collection and entry of data in to the NJR.

NJR Steering Committee patient representatives Mary Cowern and Sue Musson presented the patient perspective at all of these events. Our thanks to Mary and Sue for their continued support and helping to show how patients value NJR data and why collecting patient consent is incredibly valuable to the effective work of the NJR.